When my oncologist was giving me the run down on what to expect from chemo I think the only thing I heard during that initial conversation was that I would lose my hair…all of it!
Other people were like “Everybody doesn’t lose their hair you might be ok.” What these folks didn’t know
Someone else meaning well told me about the chemo cold cap system that could help save my hair but would be expensive, cold, and inconvenient.
Then there was everyone else saying “ITS JUST HAIR. IT WILL GROW BACK!” Yes, true but it was my hair and it didn’t FEEL as simple as that. The thought of my hair falling out or coming out in big clumps was scary. The control freak in me was like just get a cute short haircut to ease into baldness…
So 2 days after my 1st chemotherapy treatment I went to a salon with my best friends and we got our hair cut while one documented the process. I was there but not there. I held my ponytail in my hand as my heart was slowly breaking… not solely because of the hair loss but the REASON for the haircut and what else would be cut… My heart was slowly breaking in millions of pieces because I knew CHANGE was coming but I didn’t know how or what to expect and I wasn’t in control…this was just the beginning and it scared the shit out of me. My friends knew this and made many sacrifices (not just hair…time, money, resources, and more) to FIGHT with me and let me know I would never be alone on this journey.
Looking back on this now, I have to say I would’ve done it differently… I would’ve had my head shaved bald… 11 days after the haircut my scalp and eyelids started feeling weird. It was like tingling and hurting. Exactly 14 days after my 1st chemo my hair was coming out… falling like snow everywhere…just touching it lightly it was coming out, laying down it was all over the pillow, riding in the car with the window cracked it was blowing out. I had these crazy patches in my hair and I was freaking out totally traumatized…
My husband pulled out his clippers while my BFF face-timed on my iPad. WE shaved my head. I’m certain it was as traumatizing for me as it was for him and this was just the beginning of a long journey…
What an amazing spirit you have and and even more wonderful support system!!!